Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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Shit, it doesn't matter if two people have the exact same underlying condition, with as identical lives as is possible, it's still bullshit.
I get it though, I do get it. The road to accepting one's disability, finding the balance with it, it's a hard one, and sometimes taking pride in what one has managed to do can turn into exactly what that statement represents: arrogance.
I wish I could say I've never made that mistake, of saying to someone that the victories I've had mean that they can, or should, have the same goals an outcomes. Like I said, the road is a twisty and confusing one. Hell, I still don't have full acceptance of things, and I still fuck up with generalizing my experiences when looking at others'.
Which is to say that this is an important thing for folks to be aware of, and thanks for bringing it up