Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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The original was posted on /r/cfs by /u/Ok-Perception-1975 on 2025-01-31 00:20:15+00:00.

I've recently accepting having CFS (been an issue for almost 4 years now).

I am not officially diagnosed, but it's pretty obvious due to my symptoms and severity. I'm not ready to officially pursue the diagnosis immediately but want to slowly work towards it. I know it's a difficult process.

The question - is it legitimate to tell people I have ME/CFS without the official diagnosis? I feel like I shouldn't be telling anyone that until it's officially diagnosed, but it would help to explain to certain people what's going on.