Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom.

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Study on apharesis in Hannover, Germany (www.mhh.de)

submitted 1 year ago by [email protected] to c/[email protected]

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A university in Hannover, Germany is planning a study on the effects of apharesis on Long Covid patients with fatigue.

A first study in Mülheim showed an effectiveness of 70 % if I recall correctly. But they didn't have a control group. This new study will be scientifically accurate.

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[–] [email protected] 1 points 1 year ago (1 children)

I just wrote them a mail, hope I will be accepted.

[–] [email protected] 1 points 1 year ago (1 children)

Wish you had/will have luck. Any update?

[–] [email protected] 1 points 1 year ago

Had to fill in a long form, print it out and send it to them along with all my medical records. No answer yet. I guess they take as long as I do to go over a form.