Medicine
This is a community for medical professionals. Please see the Medical Community Hub for other communities.
Official Lemmy community for /r/Medicine.
[email protected] is a virtual lounge for physicians and other medical professionals from around the world to talk about the latest advances, controversies, ask questions of each other, have a laugh, or share a difficult moment.
This is a highly moderated community. Please read the rules carefully before posting or commenting.
Related Communities
- Medical Community Hub
- Medicine (📍)
- Medicine Canada
- Premed
- Premed Canada
- Public Health
See the pinned post in the Medical Community Hub for links and descriptions. link ([email protected])
Rules
Violations may result in a warning, removal, or ban based on moderator discretion. The rule numbers will correspond to those on /r/Medicine, and where differences are listed where relevant. Please also remember that instance rules for mander.xyz will also apply.
-
Flairs & Starter Comment: Lemmy does not have user flairs, but you are welcome to highlight your role in the healthcare system, however you feel is appropriate. Please also include a starter comment to explain why the link is of interest to the community and to start the conversation. Link posts without starter comments may be temporarily or permanently removed. (rule is different from /r/Medicine)
-
No requests for professional advice or general medical information: You may not solicit medical advice or share personal health anecdotes about yourself, family, acquaintances, or celebrities, seek comments on care provided by other clinicians, discuss billing disputes, or otherwise seek a professional opinion from members of the community. General queries about medical conditions, prognosis, drugs, or other medical topics from the lay public are not allowed.
-
No promotions, advertisements, surveys, or petitions: Surveys (formal or informal) and polls are not allowed on this community. You may not use the community to promote your website, channel, community, or product. Market research is not allowed. Petitions are not allowed. Advertising or spam may result in a permanent ban. Prior permission is required before posting educational material you were involved in making.
-
Link to high-quality, original research whenever possible: Posts which rely on or reference scientific data (e.g. an announcement about a medical breakthrough) should link to the original research in peer-reviewed medical journals or respectable news sources as judged by the moderators. Avoid login or paywall requirements when possible. Please submit direct links to PDFs as text/self posts with the link in the text. Sensationalized titles, misrepresentation of results, or promotion of blatantly bad science may lead to removal.
-
Act professionally and decently: /c/medicine is a public forum that represents the medical community and comments should reflect this. Please keep disagreement civil and focused on issues. Trolling, abuse, and insults (either personal or aimed at a specific group) are not allowed. Do not attack other users' flair. Keep offensive language to a minimum and do not use ethnic, sexual, or other slurs. Posts, comments, or private messages violating Reddit's content policy will be removed and reported to site administration.
-
No personal agendas: Users who primarily post or comment on a single pet issue on this community (as judged by moderators) will be asked to broaden participation or leave. Comments from users who appear on this community only to discuss a specific political topic, medical condition, health care role, or similar single-topic issues will be removed. Comments which deviate from the topic of a thread to interject an unrelated personal opinion (e.g. politics) or steer the conversation to their pet issue will be removed.
-
Protect patient confidentiality: Posting protected health information may result in an immediate ban. Please anonymize cases and remove any patient-identifiable information. For health information arising from the United States, follow the HIPAA Privacy Rule's De-Identification Standard.
-
No careers or homework questions: Questions relating to medical school admissions, courses or exams should be asked elsewhere. Links to medical training communitys and a compilation of careers and specialty threads are available on the /r/medicine wiki. Medical career advice may be asked. (rule is different from /r/Medicine)
-
Throwaway accounts: There are currently no limits on account age or 'karma'. (rule is different from /r/Medicine)
-
No memes or low-effort posts: Memes, image links (including social media screenshots), images of text, or other low-effort posts or comments are not allowed. Videos require a text post or starter comment that summarizes the video and provides context.
-
No Covid misinformation, conspiracy theories, or other nonsense
Moderators may act with their judgement beyond the scope of these rules to maintain the quality of the community. If your post doesn't show up shortly after posting, make sure that it meets our posting criteria. If it does, please message a moderator with a link to your post and explanation. You are free to message the moderation team for a second opinion on moderator actions.
view the rest of the comments
Mine’s not progressed that far, caught it relatively early so just degenerative changes and random inflammation all over the place. I’m on maximum dose of NSAIDs (like Celecoxib which are better than nothing and I’m fortunate to tolerate them so far) and on a waitlist for biologic treatment qualification but my country doesn’t pay for it unless you’re already fusing so I don’t put much hope in it. This kind of medicine can be brought for ~$150 per month (cheapest TNFa inhibitor generic like Hyrimoz or Yuflyma) but up to $2000/m for stuff that you have to use if those don’t help (IL17A and JAK inhibitors). Apparently DMARDs like Sulfasalazine are no longer used even though they were standard just a couple of years ago since they’re not very effective in treating axial kind of this disease, just peripherial.
If you just found out - I think everyone affected wants to educate others after their diagnosis so that they don’t have to go through the same unnecessary pain but doctors just don’t have time to consider rare diseases. There’s also an issue that it’s common for this disease to present no biomarkers (especially if you have non-radiographic kind) so you might have inflammation visible on MRI with normal CRP and sed rate, weird stuff like that. There are lots of people that were referred to a psychologist before they were referred to a rheumatologist, at least where I live.
The only way for people not to go through this horrible process is to have better funded healthcare. When healthcare is a machine that’s supposed to make a profit there’s no sense in spending too much time on expensive to treat stuff. There is no magic solution unfortunately. I mean there is but it’s called fringe left ;)
Thats very interesting, I dont know much about these medications. Which country are you in? Also what is 'fringe left'? I never heard this phrase, where does it come from?
These are standard course of treatment according to current state of medical / scientific knowledge. I’m in Poland but what I’ve shared is generally what the course of treatment is. Most people are fine with NSAIDs.
I was joking that healthcare reform that would solve it would be deemed too left wing politically. There’s been some activism in the US on that front like shooting private healthcare CEO but even raising taxes is now ridiculed.
Is Polish your first language? Because your written English is perfect, your writing is like that of a (well educated) native!