this post was submitted on 08 Dec 2023
30 points (96.9% liked)

Health - Resources and discussion for everything health-related

2966 readers
342 users here now

Health: physical and mental, individual and public.

Discussions, issues, resources, news, everything.

See the pinned post for a long list of other communities dedicated to health or specific diagnoses. The list is continuously updated.

Nothing here shall be taken as medical or any other kind of professional advice.

Commercial advertising is considered spam and not allowed. If you're not sure, contact mods to ask beforehand.

Linked videos without original description context by OP to initiate healthy, constructive discussions will be removed.

Regular rules of lemmy.world apply. Be civil.

founded 2 years ago
MODERATORS
 

At a time when abortion access can vary widely across the U.S., many reproductive health advocates are concerned about the impact of data sharing systems that automatically transmit patients’ electronic health records across institutions and state lines. The Biden administration is looking to introduce new regulations to bolster patients’ privacy — but the proposed rules are getting pushback from companies like UnitedHealth Group and Epic, which argue that they would make data sharing harder overall, contrary to the overarching goals of the health care system.

In April 2023, the Office of the National Coordinator for Health Information Technology (ONC) proposed regulations that aim to bolster patient confidentiality by forcing software makers to ensure that health care providers can easily segment and protect specific information from disclosure when requested by patients.

According to the proposal, health records systems will be required to comply with a new privacy and security framework by January 2026.

you are viewing a single comment's thread
view the rest of the comments
[–] [email protected] 1 points 1 year ago* (last edited 1 year ago)

We so need this change or something like it. There's an un believable amount of waste and medical errors in the Healthcare system that results from poor communications between different Healthcare Institutions. I'm skeptical about push back from the big companies like epic, who use things like their own care everywhere system, that do this but only between institutions that use them, as a selling point.

I totally see the concern of reproductive rights advocates though. I think the ideal solution is to codify roe v wade into federal law and also just generally protect people's Healthcare data from bad faith state actors better. But in the meantime maybe something like an opt out? Like a central registry where you can say, hey I don't want my data to be able to go to my new doctors automatically when I see them. And then if you previously had an abortion or you're getting care for your trans child out of state or something it would be inaccessible to new health care providers. Like a federal government website where you could manually shut off the data sharing yourself for any reason.