Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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The original was posted on /r/cfs by /u/OldMedium8246 on 2025-01-19 22:36:36+00:00.

Google can only take me so far. My geneticist told me straight up that often times, management recommendations from others with the same illness are more useful than a doctor’s recommendations. Wondering if the same applies to ME/CFS comorbidities.

I have Loeys-Dietz Syndrome, which is a rare connective tissue disorder similar to Ehlers-Danlos and Marfan Syndrome. I’m guessing it’s the source of pretty much all of my health issues. My other official diagnosis is POTS. I have a ton of other symptoms, but ultimately chronic pain and fatigue are my biggest issues.

What are your comorbidities, and how related do you think they are to your ME/CFS, if at all?