this post was submitted on 21 Jan 2025
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Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a...

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The original was posted on /r/cfs by /u/CelesteJA on 2025-01-20 21:34:45+00:00.


I know we're not meant to push through, but there are times where I have no choice when I need get up to use the bathroom or something (I don't have a bedpan).

And when I do push through it brings me to the verge of tears. Not from sadness, but from the overwhelming uncomfortable sensation throughout my body as I'm pushing it beyond it's limits.

Before I got ill, I saw videos of people who had been in comas for years and were having to train themselves to walk/hold themselves up again, and they would be crying while pushing themselves to do so. It makes me wonder if it's the same kind of overwhelming sensation as that.

Edit Interesting. It seems everyone has different reasons for why they cry when pushing through. For me it's nothing to do with sadness, anxiety, shame or exhaustion. It's the uncomfortable sensation of every muscle, nerve and bone in my body feeling like they're suffocating and screaming. It's kind of a similar sensation to that "static" feeling your foot gets when it falls asleep and you dare stand on it (not the prickling part, the part that feels god awful) but all throughout my body.

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