Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

This is an automated archive made by the Lemmit Bot.

The original was posted on /r/cfs by /u/makethislifecount on 2025-01-29 23:24:13+00:00.

I struggled with the word “Pacing” for the longest time. I think it’s a confusing naming mistake, much like CFS is a naming mistake for this illness. Because in common vernacular for most people, pacing means to “keep pace” .. i.e. do a steady pace. So people often confuse it to mean “do as much as you can right now, but not more”.

It took me a long time to learn that in our world, “Pacing” means doing LESS than you can. If I could rename it, I would call it “Playing safe” or “Protecting” or something clearer on the intent of what it is supposed to mean for us.