FundMECFSResearch

On June 8th, protesters in Portland, OR set up camp on the driveway of the U.S Immigrants Customs Enforcement (ICE) office, located at 4310 S Macadam Ave. A call went out for others to join the demonstration, maintaining a 24/7 presence in order to stop all movement of vehicles to and from the building and interrupt “Enforcement and Removal” operations.

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In our recently submitted grants we had to change “traumatic brain injury” to “concussive brain injury” and “male and female mice” to “male and non-male mice” because traumatic and female are now verboten words that can get our grants killed. It’s insanity.

SBS Insight Invisible Illness – Statement by 4 Studio Participants​

Published: 23 June 2025​

Invisible, Misrepresented, and Harmed: ME/CFS Voices Demand Accountability from SBS​

A Joint Statement from Participants and Advocates in Response to the 20 May 2025 Episode of Insight​

This statement has been prepared by a group of individuals who participated in the recent SBS Insight episode on invisible illness. We are united in our deep concern over how the episode was produced, edited, and presented and the serious harm it caused by misrepresenting Myalgic Encephalomyelitis (ME/CFS) and its impact on the wider chronic illness community.​

We believe this broadcast represents a clear breach of SBS’s own Code of Practice. The program:​

• Failed to uphold editorial integrity by platforming a participant with undisclosed commercial interests (Section 3.1: Editorial Independence and Integrity);
• Presented medically inaccurate and misleading portrayals of ME/CFS (Section 3.2: Accuracy);
• Minimised the diversity of lived experiences in favour of a single recovery narrative (Section 3.3: Diversity of Views and Perspectives);
• Caused emotional harm to participants and viewers alike (Section 4.1: Harm and Offence);

As a public broadcaster, SBS has a duty to ensure ethical, accurate, and inclusive storytelling, especially when dealing with marginalised communities.​

[…]

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This is a screenshot of a bluesky post from “The Tennessee Holler” posted 12 hours ago. The post reads: “If you’re zip-tying grandmas protesting losing health care maybe you’re not the good guys in the story?” The post includes a repost from Joe G posted 2 hours ago that says “Arresting people in wheelchairs protesting Medicaid cuts.” Below the text is a video thumbnail showing what appears to be law enforcement officers restraining an elderly person in a wheelchair in what looks like a government building or office setting.

The Post

The output of computer-vision research is overwhelmingly aimed towards monitoring humans. The potential ethical implications need more scrutiny.

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Woman in a wheelchair saying: “THERE IS NO MARRIAGE EQUALITY UNTIL PEOPLE WITH DISABILITIES CAN MARRY WITHOUT LOSING BENEFITS”

Context:

In ZFC set theory (which most of modern maths is built upon). The natural numbers are defined as recursions of empty sets.

Ie. 0 = ∅ (the empty set)

1 = {∅} = {0}

2 = {∅, {∅}} etc…

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Sarcastic bluesky post saying [time traveling back to 1933 to make sure to tell Germans to protest Hitler less vigorously so as not to alienate bougie centrists who want to go to brunch undisturbed, thus preventing the rise of fascism]