Tight-laced

joined 2 years ago
[–] [email protected] 0 points 2 years ago (1 children)

Vampire Survivors on my phone.

Addictive as hell. Completed 100%, now going through and completing every level with every character. about 25% of the way there currently.

[–] [email protected] 5 points 2 years ago

I hate to say it, but while hopeful, it's unlikely.

I've been around the CFS/ME community since my husband got it 6 years ago. There a small handful of people who have recovered, but generally they've been "misdiagnosed" with CFS and then correctly diagnosed/treated. The majority live with it for the rest of their lives. It's also why the life expectancy is only 50 - many simply cannot live with that level of pain/suffering day in, day out without any real hope of improvement/relief. Its a dreadful illness.

[–] [email protected] 8 points 2 years ago (2 children)

My husband has ME/CFS, like the Physics Girl. It's an absolutely devastating illness. He was a very active 35 when he was told there's no cure, not even a treatment, and that pain/fatigue was his life now for the rest of his days.

We've been around this long enough to see promising drug/cure/treatment/diagnostic tests come and disappear, month after month, year after year. The influx of funding/awareness linked to Long Covid is incredibly welcome, but many instances are repeats of previous ME/CFS research, so it holds up previous findings but doesnt drive anything forward. There's not been any real progress in the last 2 years, and the funding/focus is waning. I may be jaded, but hopes are low. I also sincerely hope I'm wrong.

[–] [email protected] 6 points 2 years ago

Oooh, that's fascinating

[–] [email protected] 4 points 2 years ago (1 children)

Dark

Or Peaky Blinders

[–] [email protected] 20 points 2 years ago* (last edited 2 years ago)

Makes you wonder why the staff unionised in the first place. Sounds like they weren't being valued from the offset.

[–] [email protected] 2 points 2 years ago

Banana and Salad Cream sandwiches.

The Salad Cream adds a nice tangyness, you can tell yourself the banana makes it healthy, and you've got a proper student sandwich.

Works surprisingly well.

[–] [email protected] 1 points 2 years ago

I don't have a technical answer for you, but as a likely subscriber - I'm glad to see you here. Its (lemmy/kbin universe) is feeling more and more like a reddit replacement day by day.

Welcome & look forward to finding you wherever the sub ends up 👍

[–] [email protected] 1 points 2 years ago

I don't have a technical answer for you, but as a likely subscriber - I'm glad to see you here. Its (lemmy/kbin universe) is feeling more and more like a reddit replacement day by day.

Welcome & look forward to finding you wherever the sub ends up 👍

[–] [email protected] 3 points 2 years ago

Thats quite the photo.

Though the article does point out that they were nearly swallowed.

[–] [email protected] 2 points 2 years ago

I'm conflicted.

Sad that all that development and fossil fuel usage will come to a rather nice and remote section of Scotland.

But would be cool to take my daughter to see a rocket launch.

[–] [email protected] 1 points 2 years ago
  1. Buy a big mansion/estate somewhere quiet in Scotland
  2. Hire staff and carers
  3. Fill mansion with the CFS/ME sufferers who are in awful situations and give them somewhere safe/peaceful to exist.
  4. Rinse and repeat to how many such facilities that much money can support.
  5. Leave enough in trust to keep the facilities open.
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