this post was submitted on 29 May 2025
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I have a rare lung condition that affects everything in my life. It still embarrasses me to walk with "normal" people because I get winded easily and generally travel very slow. I'm self conscious of all the water weight my body is putting on because it makes me look really awful. Some mornings, it takes me up to ten minutes to just put my clothes on because it's so hard to breathe.
I wish I could be considered for a lung transplant, but you have to be either very old or on your death bed, which bothers me. I'm in my early 30s and just want to live.
May I ask which lung condition?
It's Idiopathic Pulmonary Arterial Hypertension
That is a tough one. Sorry you have to deal with that.
I have my own, unrelated conditions which cause me to need time and/or help (cystic fibrosis). I hope they can get better treatments for you soon.
I appreciate it. Yours honestly sounds harder in several ways. Best of luck, friend