Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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The original was posted on /r/cfs by /u/Safe-Trainer-441 on 2025-01-20 17:01:18+00:00.

I got my first PEM episode / rolling PEM out of nowhere (but maybe now in hindsight I could see years back I had small signals but you put it down to just usual life tiredness).

When it happened I genuinely thought I had covid / flu / ebv (but all tests were negative). Then it started to “go away” and you think you’re getting over it, then it starts up again! And you think wtf is this? Why is this virus not going away? Genuinely thought I had a virus for 4 months!

Little did I know it was good old rolling PEM! I was ignorant and thought MECFS was a syndrome where people slept/were tired a lot. Had no idea it was multi-systemic and PEM felt like flu or I would have picked it up sooner.