this post was submitted on 05 Feb 2025
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Chronic Illness

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I see her every 2-3 weeks at the moment. I only mentioned the symptoms* that I know can be related to the disease I'm seeing her for. They apparently shouldn't be near as bad, according to the results of my blood test (she usually calls me a few hours to a day after the appointment to tell me the results). So now I have yet another health issue to figure out, yay!

Anyone willing to bet whether I'll be diagnosed as 'stressed' or 'skinny young woman' this time? Those were my diagnoses plenty of times when I described those symptoms. I'm not even a woman, so it comes with a little side dish of dysphoria.

*Light headedness and fainting to the point I don't feel safe standing too long (though walking is fine), extreme night sweats, very high heart rate and very low blood pressure

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[–] [email protected] 8 points 2 days ago (2 children)

Have you looked into/ruled out POTS? (night sweats could be a related autonomic issue)

[–] [email protected] 4 points 2 days ago (1 children)

I have not, thanks for the idea, I'll look into it and bring it up at the appointment if it seems to fit!

[–] [email protected] 2 points 1 day ago

If you have the time and ability to chart your bp/hr multiple times, you can also do your own TTT (tilt-table-test).

[–] [email protected] 2 points 2 days ago

Came here to say sounds like POTS.

Hope you get the diagnosis and the help you need op!

[–] [email protected] 6 points 2 days ago (1 children)

"*Light headedness and fainting to the point I don't feel safe standing too long (though walking is fine), extreme night sweats, very high heart rate and very low blood pressure"

Is it positional? Like you're laying down and you're fine, but you stand up to walk to another room and you almost pass out?

I had that and it turned out to be medication related.

[–] [email protected] 4 points 2 days ago (1 children)

It sometimes happens when I'm sitting or lying down, too. Like I'll see little stars and black patches. It's worse if I stand up quickly, though that's a direct consequence of low blood pressure. When I'm moving, im fine. I even run (or at least I will again once my knee heals), which further suggests blood pressure I think. But I have no idea why my blood pressure is so low.

[–] [email protected] 2 points 2 days ago (1 children)

In my case it was medication related. Took ages to figure out. Scared the hell out of my cardiologist one time when they couldn't detect my blood pressure.

"I assure you, I do have blood pressure because I'm sitting here talking to you."

"Yeah, we don't know how you're doing that! It's 58/47... we're taking you to the ER now!"

The medication caused a dehydration issue and that dropped the blood pressure. How are you on that front? Staying hydrated?

[–] [email protected] 2 points 1 day ago (1 children)

Time to stop putting off checking whether my meds interact in unwanted ways! None of my doctor's actually know because I have prescriptions from multiple specialties.

I'm actually in danger of drinking too much water rather than the opposite. I counter that by taking electrolytes though. Maybe the good hydration is what keeps my blood pressure from being quite as bad as it was for you!

[–] [email protected] 2 points 1 day ago* (last edited 1 day ago) (1 children)

Yeah, I had to figure mine out on my own. We bought a house and moved and in the process I lost my pill bag(!) Took a week to find it, but while we were moving, I felt GREAT! No dizzyness, no passing out, I could function.

When I found the bag I was like "OK, let's figure out which one is the problem..." and I decided to start re-taking them one at a time...

First one was Carvedilol for blood pressure and I passed out 15 minutes later, no other meds in my system.

https://medlineplus.gov/druginfo/meds/a697042.html

Reported that back to my doctors, they switched me to Metoprolol and I've been (mostly) fine ever since.

https://medlineplus.gov/druginfo/meds/a682864.html

Please don't do what I did and stop taking your meds for a week! Talk to your pharmacist too!

[–] [email protected] 2 points 1 day ago (1 children)

Wow that sounds scary! But im glad it worked out for the best. Im just going to try and look up research and also work with my pharmacist.

[–] [email protected] 2 points 1 day ago

It was scary, but at that point I had already had a heart attack and open heart surgery, nothing much scares me anymore. :)

[–] [email protected] 2 points 1 day ago
[–] [email protected] 1 points 2 days ago* (last edited 2 days ago)

Extreme Night sweats can be an indicator of cancer. It was the first sign I had when I found out I had non-hodgkins lymphoma. They thought Thyroid with me at first too.