sudc

joined 11 months ago
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[–] [email protected] 70 points 4 days ago (7 children)

I found my three year old unresponsive during a nap and knew he was dead, but had to try my best to comfort my wife as she broke down screaming while trying to resuscitate him. It's still hard to think about.

If this happens to someone you know, please let them know about SUDC (Sudden Unexplained Death in Childhood). It's like SIDS but for children older than 1 year. The SUDC Foundation has a website at https://sudc.org/ and provides community for parents, grandparents and siblings that have gone through it. In my case, having community might've been lifesaving.

Sorry to come across like a PSA, but March will be SUDC Awareness Month, and this post made me think of it. I'll be posting about it over in [email protected]. It's not exactly an upbeat Lemmy community, but I hope that it can help anybody else going through the same thing find the community they need.

 

Today is Random Act of Kindness Day.

Please visit our website and download our kindness card template. Here’s how you can make a meaningful impact:

✨ Add your child’s name to honor.

✨ Challenge yourself to pass out one kindness card per week as you go about your day.

Every small act of kindness helps raise SUDC awareness.

👉 Download your template today and join the challenge! https://sudc.org/literature-brochures/

 

The SUDC Foundation recognizes the profound impact that the sudden death of a child can have not only on families but also on the professionals involved in the case. To support medical professionals in navigating this difficult terrain, the SUDC Foundation offers a wealth of resources at sudc.org.

These resources include:

  1. Downloadable fact sheets for quick reference on Sudden Unexplained Death in Childhood (SUDC)
  2. Newsletters that provide ongoing updates and research findings
  3. Registration for monthly e-news to stay informed about developments in the field
  4. Access to social media platforms offering current and accurate information.

Visit the site today for easy access to these vital tools and additional support.

 

Join us in supporting the SUDC Foundation as we work toward our $75,000 goal, with every donation today tripled thanks to the Jackson Walsh and Moss Pieratt Foundations.

Since 2021, the McDowall family has honored Macy through an Ice Hockey Jamboree, raising awareness for SUDC and celebrating her memory. 💙 As they shared:

“The rink became a safe space for us, offering community, comfort, and a platform to share Macy’s story while raising awareness for SUDC and the families it forever changes.”

💡 Donate now and triple your impact! Every gift makes a difference in supporting families and advancing research. 👉 https://sudc.org/donate

Thank you for your support—together, we can make an incredible impact! 💙

 

December 2-8 is National Grief Awareness Week—a time for all of us in the SUDC community to reflect, connect, and honor our shared experiences. This week reminds us of the strength we find in each other and the importance of openly acknowledging grief.

At the SUDC Foundation, we are here to walk alongside you, providing a compassionate space and unwavering support at no cost. Together, we can continue to honor our children and bring hope to other families navigating this journey.

Let’s make this week a beacon of compassion, understanding, and giving. 💙

 

Today marks our 2nd Annual "Give to the Max" campaign for the SUDC Foundation!

Give to the Max is a statewide initiative that brings together communities across Minnesota to support thousands of nonprofits and schools. Your donation today will have an immediate impact, helping us continue our vital work in supporting families like yours and others around the world.

If your employer offers a matching gift program, you can double or even triple your donation! Simply let us know at [email protected], and we’ll confirm the match for your employer.

Please visit GiveMN.org, search for the SUDC Foundation, and make your donation today!

Thank you for your continued generosity and support!

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submitted 3 months ago* (last edited 3 months ago) by [email protected] to c/[email protected]
 

Today is Children’s Grief Awareness Day—a time to honor the unique journey of grieving children. At the SUDC Foundation, we understand the special needs of siblings coping with the sudden loss of a brother or sister.

🦋 Healing Tip: For siblings, creating space to honor their loved ones can foster both healing and connection. Simple acts like lighting a candle, making a memory box, or sharing stories can help siblings feel supported and connected in their grief. Encouraging unique ways to honor their loved one can nurture resilience and validate their grief.

Through our Teen Ambassador Program, we empower siblings to find their voice, build community, and inspire hope in their own journeys and beyond. 🦋 https://sudc.org/ambassador-program/

🦋 Learn more about navigating sibling loss with these resources: https://sudc.org/for-siblings/

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World Kindness Day (midwest.social)
submitted 3 months ago* (last edited 3 months ago) by [email protected] to c/[email protected]
 

At the SUDC Foundation, we believe in the power of kindness to bring comfort, healing and hope to those who have experienced unimaginable loss. Whether it’s offering your compassion, a warm embrace, or simply being present; small acts of kindness can make a world of difference.

The SUDC Foundation offers trauma-informed grief support and services at no charge to those affected by Sudden Unexplained Death In Childhood.

Join us in honoring the strength of our community by sharing kindness today and every day.

 

Postmortem genetic testing plays a crucial role in understanding sudden unexplained deaths in children (SUDC). It not only helps identify potential causes but also provides key insights for the child’s family, including assessing genetic risks for relatives.

Benefits include uncovering the cause of death, offering peace of mind, and supporting informed decision-making for at-risk family members. Learn more about how genetic testing can aid in investigations and support ongoing research

➡️ https://sudc.org/post-mortem-genetic-testing/

 

No one should grieve alone. The SUDC Foundation is here to support you every step of the way. From providing emotional support to connecting you with others who understand your journey, we are dedicated to helping you find comfort and hope.

💙 Learn more at www.sudc.org

 

It's Lift Me Up Tuesday! This is your gentle reminder to take a deep breath and be kind to yourself. 🌿 Grief can be overwhelming, but remember, caring for yourself is an important part of the healing process. You are allowed to take it one moment at a time.

We are here to support you, every step of the way. 💛

 

The article is about another parent with a child that died of SUDC:

Two of Schruben’s six children died at young ages due to medical complications. At 4 years old, his son Tucker passed away in his sleep. A few years later, Schruben's daughter, Alana, died from complications due to seizures.

“Life involves suffering sometimes,” Schruben said. “But you just have to go on.”

The quote resonates with me quite a bit

[–] [email protected] 3 points 5 months ago

These posts are about maintaining mental health, not achieving it. If you're deeply depressed or have other serious things going on, you should talk to a professional.

Everybody's different, and each approach helps everyone differently. You might appreciate this perspective more:

What have you got to lose?

You know, you come from nothing

You're going back to nothing

What have you lost? Nothing!

Always look on the bright side of life

https://www.youtube.com/watch?v=SJUhlRoBL8M

[–] [email protected] 7 points 5 months ago

This post is about maintenance mode. Suicidal ideation is emergency mode, and these steps would not be appropriate. If you or anyone else reading this are having suicidal ideation, please talk to someone qualified. In the US, you can dial 9-8-8.

 

Lift Me Up Tuesday 💛

How are you feeling today? It’s important to take a moment and check in with yourself and those around you. Whether you’re feeling “Not Good” or “Amazing!”, your feelings are valid, and it’s okay to share them.

Today, let’s make it a point to check in on our friends and loved ones. A simple “How are you?” can make a world of difference.

Remember, you’re never alone on this journey. Reach out, connect, and lift each other up. 💛

[–] [email protected] 2 points 5 months ago (1 children)

Sorry, missed the notification on this, but here's a virtual hug for you: 🫂

Hopefully you got some in-person hugs as well

[–] [email protected] 2 points 6 months ago

Note that like the 5 Stages of Grief that you've probably head of, this is an oversimplistic model. The reality involves a lot of bouncing between each of these at various times to various degrees. This book explains the process from the perspective of neuroscience and talks about a better model:

The Grieving Brain: The Surprising Science of How We Learn from Love and Loss

And this book talks about it more from a social perspective:

It's Ok that You're Not Ok

[–] [email protected] 2 points 7 months ago

Sorry to hear about your loss. Feel free to talk as much or as little about your son here as you'd like. Finding community where I can share grief has helped me, hopefully finding out about this will help you too.

Here's a poem that comforted me. Maybe you'll get something out of it:

My little man,

down what centuries of light did you travel to reach us here,

your stay so short-lived;

In the twinkling of an eye you were moving on,

bearing our name and a splinter of the human cross we suffer;

flashed upon us like a beacon,

we wait in darkness for that light to come round,

knowing at heart you shine forever for us

- Hugh O’Donnell

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